FAQs

Evidence shows patients’ reactions to medical treatments vary depending on race, ethnicity and gender. If research into new medicines and treatments does not include a diverse group of participants there is a risk not everyone will benefit from new treatments equally and there could even be a risk of harm.

To help ensure that levels of participation in research among black men of Afro-Caribbean origin matches the incidence/ prevalence of disease in this population.

This project will use a barrier to research participation questionnaire, interviews and focus group discussions to identify key barriers to research participation and generate discussions to identify potential solutions to the barriers highlighted. 

We are seeking representatives with experience in focus group discussions and if possible, analysis. They will be closely involved in the analysis of the questionnaire results, preparation of the interview and focus group discussion questions.

Participation on this project will be virtual, therefore you will need access to a device such as a laptop or smart phone to take part in project discussions.

This project is funded by a patient and public involvement grant from the National Institute for Health Research Biomedical Research Centre at the Royal Marsden and ICR. We will use the funding from this grant to pay representatives for their time and contribution to the project.  

Patient/ public representatives will be closely involved in the preparation of interview and focus group discussion guides, analysis of data and focus group steering.  

This will include weekly virtual meetings (via Zoom or Teams) to help draft the content of the interview and focus group discussion guides.
Following the collection of questionnaire data, patient/ public representatives will be closely involved with the analysis of the data which may require more frequent meetings.