Cancer research and your data: tell us what you want to know

Researchers at the Royal Marsden and the Institute of Cancer Research use information from patients, such as medical records, scan images and test results, to carry out research that helps improve cancer care for everyone. Patient information may be used to develop and test new technologies, including artificial intelligence (AI), that support cancer research. We want patients to know how their information may be used for research and to have a say in how this work is carried out.

What information would you like to know about how we use your data in research? Is there anything that worries you, or that you wish you knew more about?

You do not need any technical background to take part. We are interested in your views as a patient, a carer, a family member, or simply a member of the public.

On this page, you can:

• Post your thoughts on a virtual board
• Ask us anything about how patient data is currently used by researchers at the Royal Marsden and the Institute of Cancer Research

Please note: This page is not for medical advice or treatment queries. To protect your privacy, do not share personal, confidential or identifiable information about yourself or others.

We will review submissions to identify key themes. We will provide regular updates summarising what we have heard and how your feedback is informing our work. Feedback from this page may also help shape future workshops aimed at improving communication about the use of patient data in research. By submitting your responses, you consent to your answers being used for this purpose.

This activity is open to anyone, including people who have not been treated at the Royal Marsden. We particularly want to hear from people whose voices are often missing from these conversations.