Helping myself to avoid CIPN

Hi Laura,

I am glad to read about this project.

During my first chemo in 2012 I developed Stage 3 CIPN in my feet (ie severe symptoms, may limit self-care activities). I could not wear closed shoes and had difficulty walking, my skin started peeling. We had to stop at chemo cycle 4 (out of 6). The symptoms improved and after about 1 year the pins and needles stopped.

Because of this experience we changed drugs when I needed more chemo in 2020. I did some reading up on how to reduce the potential of CIPN. I came across cooling my hands and feet prior to and during the administration of the drug (same principle as cooling cap, which I never opted for). I would take an ice box with me into the MDU. I had bought 'cold therapy' socks and gloves online, they come with a compartment for gel packs which I had kept in the freezer. It was not easy get this all fixed up in MDU, esp with cannulas in my hand. I confess I gave up after cycle 2. That time around I did not develop CIPN, probably because of the change in drugs.

I am encouraged that I thought along the same lines, but even more pleased that this trial is starting. Hopefully the process will be less cumbersome than my DIY trial and most of all - may it make a positive difference to patients.

All the best with your project and academic work.

Karin S