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Improving the follow up service for people after head and neck cancer treatment
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Patients who are treated for head and neck cancer are seen by their doctors for 5 years after their treatment. This follow up focuses on seeing if the cancer treatment has been successful and that the cancer has not returned rather than assessing the side effects of treatment. Recent research at the Royal Marsden Hospital has identified many unmet needs including those related to eating and drinking, pain and difficulties with mobility. We set up a pilot clinic to address these. Our aim is to extend this pilot into a standard part of the pathway this year and we want to make sure the clinic meets the needs of the people who are attending it.
This project will be based on a type of research called experience-based co-design (EBCD) which means we will ask the people who are directly affected by the treatment to be part of the project’s development and execution. Some people have already shared their experiences of the follow up care, but we need and welcome new joiners as our project moves to the co-design phase.
We are looking for people who have lived experience of accessing the follow up services for head and neck cancer. This can include those who have had treatment but also their friends/family or significant others.
We are holding an event on Tuesday 29th April 2025 near London Bridge (London) where we will be sharing some of the results of the project so far and hearing from patients, staff and others about what improvements need to be made. We would value your input and ideas, and if you would like to come and learn more about the project and how you can get involved please email [email protected]. If you cannot attend this event but would like to be involved please also get in touch.
You can also add your thoughts to the question below: what does living well after treatment mean to you?
Patients who are treated for head and neck cancer are seen by their doctors for 5 years after their treatment. This follow up focuses on seeing if the cancer treatment has been successful and that the cancer has not returned rather than assessing the side effects of treatment. Recent research at the Royal Marsden Hospital has identified many unmet needs including those related to eating and drinking, pain and difficulties with mobility. We set up a pilot clinic to address these. Our aim is to extend this pilot into a standard part of the pathway this year and we want to make sure the clinic meets the needs of the people who are attending it.
This project will be based on a type of research called experience-based co-design (EBCD) which means we will ask the people who are directly affected by the treatment to be part of the project’s development and execution. Some people have already shared their experiences of the follow up care, but we need and welcome new joiners as our project moves to the co-design phase.
We are looking for people who have lived experience of accessing the follow up services for head and neck cancer. This can include those who have had treatment but also their friends/family or significant others.
We are holding an event on Tuesday 29th April 2025 near London Bridge (London) where we will be sharing some of the results of the project so far and hearing from patients, staff and others about what improvements need to be made. We would value your input and ideas, and if you would like to come and learn more about the project and how you can get involved please email [email protected]. If you cannot attend this event but would like to be involved please also get in touch.
You can also add your thoughts to the question below: what does living well after treatment mean to you?
