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Help shape personalised bowel cancer prevention research
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People living with Crohn’s disease or ulcerative colitis affecting the large bowel have a higher risk of developing bowel cancer. Because of this, many patients are invited to have regular colonoscopies to check for early signs of cancer.
At the moment, decisions about how often someone needs a colonoscopy are based on general clinical factors. These do not always reflect an individual person’s level of risk. This means some people may have procedures more often than necessary, while others who may be at higher risk could benefit from closer monitoring.
Our research team has developed a new test that looks at genetic changes in biopsy samples already taken during routine colonoscopies. This test helps estimate a person’s individual risk of developing bowel cancer more accurately than current methods. This is the first time we have had a tool that can provide such a personalised estimate of cancer risk for people with Inflammatory Bowel Disease (IBD).
Before starting a larger clinical study, we want to work closely with people living with IBD and members of the public to help shape how this future research is designed and carried out. We want to understand what matters most to patients, including:
how information about cancer risk should be explained
any concerns about personalised testing
challenges people may face when attending colonoscopy appointments
This study will only be successful if it is designed in a way that people trust, understand, and feel comfortable taking part in.
We are inviting people to help shape this research by taking part in an online focus group lasting 1–2 hours.
In these online focus groups, participants will share their thoughts on the study design and help us make sure study information is clear, easy to understand, and appropriate for people from different backgrounds.
You may be asked to give feedback on materials such as participant information sheets, consent forms or study leaflets. No previous research experience is needed - we are interested in your opinions and lived experience.
We welcome all people living with IBD to take part.
If you are interested in joining a focus group, please email [email protected].
People living with Crohn’s disease or ulcerative colitis affecting the large bowel have a higher risk of developing bowel cancer. Because of this, many patients are invited to have regular colonoscopies to check for early signs of cancer.
At the moment, decisions about how often someone needs a colonoscopy are based on general clinical factors. These do not always reflect an individual person’s level of risk. This means some people may have procedures more often than necessary, while others who may be at higher risk could benefit from closer monitoring.
Our research team has developed a new test that looks at genetic changes in biopsy samples already taken during routine colonoscopies. This test helps estimate a person’s individual risk of developing bowel cancer more accurately than current methods. This is the first time we have had a tool that can provide such a personalised estimate of cancer risk for people with Inflammatory Bowel Disease (IBD).
Before starting a larger clinical study, we want to work closely with people living with IBD and members of the public to help shape how this future research is designed and carried out. We want to understand what matters most to patients, including:
how information about cancer risk should be explained
any concerns about personalised testing
challenges people may face when attending colonoscopy appointments
This study will only be successful if it is designed in a way that people trust, understand, and feel comfortable taking part in.
We are inviting people to help shape this research by taking part in an online focus group lasting 1–2 hours.
In these online focus groups, participants will share their thoughts on the study design and help us make sure study information is clear, easy to understand, and appropriate for people from different backgrounds.
You may be asked to give feedback on materials such as participant information sheets, consent forms or study leaflets. No previous research experience is needed - we are interested in your opinions and lived experience.
We welcome all people living with IBD to take part.
If you are interested in joining a focus group, please email [email protected].
