Help us provide better support for managing lymphoedema

This project aims to improve care for people who have had gynaecological cancer surgery and may be at risk of developing swelling in their legs, known as lower limb lymphoedema. We want to create a post-surgery care plan that provides patients with the right information and support at the right time to help them stay well.

Managing lymphoedema early can make a big difference, but we need your help to design the best approach. What are your views on:

• When is the best time to provide information and support?
• How would you prefer to receive this information? (for example, via leaflets, videos, or one-to-one conversations, group sessions)
• Would you like to participate in exercises that could reduce the risk of lymphoedema or help manage it if it occurs?

This project aims to provide proactive, holistic care that considers the whole person and their needs, rather than focusing solely on the condition. Your input will guide us in developing a patient-centred plan that is practical, straightforward, and designed to reflect the experiences of those who have undergone cancer treatment.

By sharing your thoughts, whether you have had gynaecological cancer or any other cancer, you can help us better understand the lived experience and improve care for others in similar situation. We want to hear from patients who have been or are at risk of developing lymphoedema about how they would like to see post-operative care and risk reduction advice improved. Please add your ideas below.