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What do patients and professionals want from Imaging Health Records?
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Consultation has concluded
Understanding their views and preferences on access to imaging scans and reports
Supporting Oncology Patients through access to optimised Imaging Digital Health Records
Background
Diagnostic imaging - the use of technologies to produce images of the internal structures of the body to help diagnosis - has greatly improved healthcare, particularly in the cancer setting.
Patients generally have several scans, from early diagnosis to follow-up and the radiology reports of these form a vital element of a patient's medical notes. Patient access to imaging health records is becoming increasingly common across different countries and since 2014 in selected hospitals in the UK, it has allowed patients access to their own health records. This increased patients' access to their medical records in the UK gives us a real opportunity to work with them, and health care professionals, to develop patient-centred imaging.
How can I get involved?
To understand patients’ views on having such access, specifically digital access to their imaging reports and scan images we would like to ask you to complete the below survey.
Our aim is to use this targeted approach to determine patients’ views on how access to a digital platform could better support and engage patients to become active users of digital health services, and their views on how that might improve patient care.
Contact Ana Ribeiro - [email protected] - to find out more about getting involved
Funding
This project is funded by the NIHR Biomedical Research Centre at The Royal Marsden and the ICR and supported by The NIHR Royal Marsden Clinical Research Facility.
This project has also received a PPI grant from the NIHR Biomedical Research Centre at The Royal Marsden and the Institute of Cancer Research.
Understanding their views and preferences on access to imaging scans and reports
Supporting Oncology Patients through access to optimised Imaging Digital Health Records
Background
Diagnostic imaging - the use of technologies to produce images of the internal structures of the body to help diagnosis - has greatly improved healthcare, particularly in the cancer setting.
Patients generally have several scans, from early diagnosis to follow-up and the radiology reports of these form a vital element of a patient's medical notes. Patient access to imaging health records is becoming increasingly common across different countries and since 2014 in selected hospitals in the UK, it has allowed patients access to their own health records. This increased patients' access to their medical records in the UK gives us a real opportunity to work with them, and health care professionals, to develop patient-centred imaging.
How can I get involved?
To understand patients’ views on having such access, specifically digital access to their imaging reports and scan images we would like to ask you to complete the below survey.
Our aim is to use this targeted approach to determine patients’ views on how access to a digital platform could better support and engage patients to become active users of digital health services, and their views on how that might improve patient care.
Contact Ana Ribeiro - [email protected] - to find out more about getting involved
Funding
This project is funded by the NIHR Biomedical Research Centre at The Royal Marsden and the ICR and supported by The NIHR Royal Marsden Clinical Research Facility.
This project has also received a PPI grant from the NIHR Biomedical Research Centre at The Royal Marsden and the Institute of Cancer Research.
Across the world hospitals are using increasingly sophisticated digital systems to capture patients’ health records. This opportunity will allow patients direct, independent access to their own Digital Health Records (DHR), thus giving patients’ greater oversight of their own medical information, potentially leading to improved patient satisfaction and outcomes.
As part of a PhD research project we are conducting a study to understand patients’ views on having independent access to their digital imaging reports.
Our aim is to use this targeted approach to determine patients’ views on how access to a digital platform could better support and engage patients to become active users of digital health services, and their views on how that might improve patient care.
We would like to thank you for taking part in this survey. Your answers will be confidential.
Please complete this to the best of your knowledge.
Questions can be left unanswered.
Consultation has concluded
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Question 1: What are the experiences and expectations from patients with advanced cancer with regards to direct access to their imaging reports and scans?
Question 2: What are patients' preferences with regards to access to imaging reports and scan results?
