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Helping patients make more informed choices about early phase research
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This part of the research has now concluded. Thank you to everyone who visited our project page and contributed.
Does a list of questions and prompts improve the conversation about entering a trial?
Background
Phase I clinical trials of experimental compounds are an option for some cancer patients who have already tried other treatment options. Deciding to enter such a trial is not a straightforward decision for a patient, and this can create anxiety and uncertainty.
A patient will need to weigh up the risks and benefits of taking part in a trial and talk to their health professional about the likely impact on their health, the latest evidence and the chances of success.
Previous research has shown that some key information is either not always clearly communicated or taken on board in initial conversations between patients and professionals, and that some patients may not always ask important questions about the trial.
With that in mind a Question Prompt List (QPL) has been designed with experienced patients. Patients will use the list to ask questions that are important to them during their conversation with a health professional about entering a clinical trial.
We want know if this improves the conversation between patient and health professional.
An improvement in this dialogue as part of the process of a patient consenting to enter a trial may increase the patients understanding, and in turn give confidence that an informed decision has been made.
How can I get involved?
We want your views on the Question Prompt List and we have designed a survey to get your feedback - please see below.
Read about how patients have been involved so far.
The sponsor of the study is The Royal Marsden NHS Foundation Trust.
Does a list of questions and prompts improve the conversation about entering a trial?
Background
Phase I clinical trials of experimental compounds are an option for some cancer patients who have already tried other treatment options. Deciding to enter such a trial is not a straightforward decision for a patient, and this can create anxiety and uncertainty.
A patient will need to weigh up the risks and benefits of taking part in a trial and talk to their health professional about the likely impact on their health, the latest evidence and the chances of success.
Previous research has shown that some key information is either not always clearly communicated or taken on board in initial conversations between patients and professionals, and that some patients may not always ask important questions about the trial.
With that in mind a Question Prompt List (QPL) has been designed with experienced patients. Patients will use the list to ask questions that are important to them during their conversation with a health professional about entering a clinical trial.
We want know if this improves the conversation between patient and health professional.
An improvement in this dialogue as part of the process of a patient consenting to enter a trial may increase the patients understanding, and in turn give confidence that an informed decision has been made.
How can I get involved?
We want your views on the Question Prompt List and we have designed a survey to get your feedback - please see below.
Read about how patients have been involved so far.
The sponsor of the study is The Royal Marsden NHS Foundation Trust.
Thank you for taking part in this quick survey about your thoughts on the use of a Question Prompt List (QPL) by patients who are considering taking part in early Phase trials.
This research study has explored how patient’s felt when they used the QPL in their informed consent consultation.
The survey has been developed based on the themes that have emerged from our research, and our work with patients so far.
The team would now like to gain broader views on the QPL through this survey.
This part of the research has now concluded. Thank you to everyone who visited our project page and contributed.
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Our research question
What is the experience of using a Question Prompt List (QPL) within the phase I clinical trial setting?
