We use cookies to ensure our site functions properly and to store limited information about your usage. You may give or withdraw consent at any time. To find out more, read our privacy policy and cookie policy.
Manage Cookies
A cookie is information stored on your computer by a website you visit. Cookies often store your settings for a website, such as your preferred language or location. This allows the site to present you with information customized to fit your needs. As per the GDPR law, companies need to get your explicit approval to collect your data. Some of these cookies are ‘strictly necessary’ to provide the basic functions of the website and can not be turned off, while others if present, have the option of being turned off. Learn more about our Privacy and Cookie policies. These can be managed also from our cookie policy page.
Strictly necessary cookies(always on):
Necessary for enabling core functionality. The website cannot function properly without these cookies. This cannot be turned off. e.g. Sign in, Language
Analytics cookies:
Analytical cookies help us to analyse user behaviour, mainly to see if the users are able to find and act on things that they are looking for. They allow us to recognise and count the number of visitors and to see how visitors move around our website when they are using it. Tools used: Google Analytics
Understanding the impact of advanced prostate cancer treatment
Share Understanding the impact of advanced prostate cancer treatment on FacebookShare Understanding the impact of advanced prostate cancer treatment on X (formerly Twitter)Share Understanding the impact of advanced prostate cancer treatment on LinkedinEmail Understanding the impact of advanced prostate cancer treatment link
Help improve how symptoms are monitored and supported in the future: This project is looking to work with people living with advanced prostate cancer,
1) To find out what side effects affect them the most and see whether these are routinely recorded
2) To learn how people move between hospital care, GP services, pharmacies, and other support services during treatment.
Many patients with advanced prostate cancer are now treated with combinations of hormone therapies that help people to live longer. The treatment can include hormone injections or tablets, in addition to drugs Enzalutamide, Darolutamide, Apalutamide or Abiraterone. The treatments can cause side effects that affect day-to-day life, such as fatigue, sexual problems, mood changes, hot flushes, sleep problems, and muscle weakness.
Research studies often measure these side effects using questionnaires (called Patient-Reported Outcome Measures or PROMs). We do not know if these tools record the issues that matter most to those living with advanced prostate cancer.
There is increasing interest across the NHS in using these types of questionnaires more routinely to better understand experiences and identify side effects. To be effective, the questionnaires should focus on the issues that truly matter to people with prostate cancer and reflect their real-life experiences. We want to identify what may be missing from current approaches.
We would like to hear from people with lived experience of advanced prostate cancer treatment. Please fill out the survey below, and if interested, there will be a chance to join a discussion group. Your feedback will help refine future discussions and ensure that our work reflects patients’ priorities and experiences from the start of their treatment.
Help improve how symptoms are monitored and supported in the future: This project is looking to work with people living with advanced prostate cancer,
1) To find out what side effects affect them the most and see whether these are routinely recorded
2) To learn how people move between hospital care, GP services, pharmacies, and other support services during treatment.
Many patients with advanced prostate cancer are now treated with combinations of hormone therapies that help people to live longer. The treatment can include hormone injections or tablets, in addition to drugs Enzalutamide, Darolutamide, Apalutamide or Abiraterone. The treatments can cause side effects that affect day-to-day life, such as fatigue, sexual problems, mood changes, hot flushes, sleep problems, and muscle weakness.
Research studies often measure these side effects using questionnaires (called Patient-Reported Outcome Measures or PROMs). We do not know if these tools record the issues that matter most to those living with advanced prostate cancer.
There is increasing interest across the NHS in using these types of questionnaires more routinely to better understand experiences and identify side effects. To be effective, the questionnaires should focus on the issues that truly matter to people with prostate cancer and reflect their real-life experiences. We want to identify what may be missing from current approaches.
We would like to hear from people with lived experience of advanced prostate cancer treatment. Please fill out the survey below, and if interested, there will be a chance to join a discussion group. Your feedback will help refine future discussions and ensure that our work reflects patients’ priorities and experiences from the start of their treatment.
We would like to hear from people affected by advanced prostate cancer. This is cancer that has spread outside of the prostate to other sites in the body. We are interested in people who have advanced prostate cancer that still responds to hormone therapy (known as ‘hormone-sensitive’). You can still complete the questionnaire even if you are unsure if your diagnosis falls into that category.
This survey asks about side effects from hormone-based treatments and how people get help with symptoms. Your answers will help shape future focus groups and a patient journey mapping project. There are 15 main questions and 3 additional optional demographic questions at the end of the survey. You do not need to answer any question you do not want to answer.
Share Living with Advanced Prostate Cancer Treatment on FacebookShare Living with Advanced Prostate Cancer Treatment on X (formerly Twitter)Share Living with Advanced Prostate Cancer Treatment on LinkedinEmail Living with Advanced Prostate Cancer Treatment link
