How can we assess health-related quality of life in sarcoma patients?

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This part of our research has now finished. Thank you to everyone who contributed.

Patient holding paper questionnaire sitting with NHS staff member

Help us design questionnaires to capture their unique experiences and quality of life

Background

Symptoms and side effects of sarcoma and its treatment(s) may have an impact on a patient’s well-being. However, there is currently no way to measure quality of life specifically in sarcoma patients.

We would like to find out how the diagnosis with a sarcoma has affected patients physically, socially and emotionally in order to develop a questionnaire about quality of life and symptom burden for sarcoma patients. This questionnaire will allow future research to understand the patient’s perspective on how the disease and treatments affect their lives.

To identify the most relevant issues that the questionnaire should cover, we have reviewed previous research and interviewed 159 patients and 35 healthcare providers.

We are now drafting the questions that will go into the questionnaire based on the issues that came up in our review of previous research and interviews.

How can I get involved?

Tell us what you think of our questionnaire by completing the survey below.

Share your comments and suggestions about our research on our Ideas Board.

This project is funded by the European Organisation for the Research and Treatment of Cancer (EORTC) Quality of Life Group.





Help us design questionnaires to capture their unique experiences and quality of life

Background

Symptoms and side effects of sarcoma and its treatment(s) may have an impact on a patient’s well-being. However, there is currently no way to measure quality of life specifically in sarcoma patients.

We would like to find out how the diagnosis with a sarcoma has affected patients physically, socially and emotionally in order to develop a questionnaire about quality of life and symptom burden for sarcoma patients. This questionnaire will allow future research to understand the patient’s perspective on how the disease and treatments affect their lives.

To identify the most relevant issues that the questionnaire should cover, we have reviewed previous research and interviewed 159 patients and 35 healthcare providers.

We are now drafting the questions that will go into the questionnaire based on the issues that came up in our review of previous research and interviews.

How can I get involved?

Tell us what you think of our questionnaire by completing the survey below.

Share your comments and suggestions about our research on our Ideas Board.

This project is funded by the European Organisation for the Research and Treatment of Cancer (EORTC) Quality of Life Group.