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Improving recruitment to proton beam therapy research trials
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This part of the research has concluded thank you to everyone who contributed.
Exploring recruitment challenges for proton beam therapy trials and understanding factors influencing patient participation
Background
Proton beam therapy is an advanced type of radiotherapy treatment, but it is only available at a small number of specialist sites in the UK.
This means that participants in a research trial investigating how effective proton beam treatment is may well have to travel to take part.
Because of this, there may be differences in the types of people that accept and decline participation in such a trial.
This in turn means the results may not be generalisable to the target population.
We want to inform future studies using proton beam therapy - therefore we need to understand more about the patients that decline participation, and their reasons for doing so.
How can I get involved?
We need your help to identify possible barriers to recruitment in trials of new radiotherapy technology, where treatment is only available at a small number of specialist hospitals.
We have designed a survey (below) asking you to rank potential barriers in relation to the impact they would have on a choice to accept or decline participation in such a study. You will also have the chance to add any additional factors that we have not included.
Your responses will help finalise the design of a study to be run within the TORPEdO clinical trial which is comparing proton beam therapy to standard radiotherapy in head and neck cancer.
Research staff time is supported by a Cancer Research UK Accelerator award.
The researchers acknowledge support by a Cancer Research UK Centres Network Accelerator Award Grant (C309/A21993) to the Advanced Radiotherapy Technologies Network (ART-NET) consortium.
This project has also received a grant from the NIHR Biomedical Research Centre at The Royal Marsden and the Institute of Cancer Research.
Exploring recruitment challenges for proton beam therapy trials and understanding factors influencing patient participation
Background
Proton beam therapy is an advanced type of radiotherapy treatment, but it is only available at a small number of specialist sites in the UK.
This means that participants in a research trial investigating how effective proton beam treatment is may well have to travel to take part.
Because of this, there may be differences in the types of people that accept and decline participation in such a trial.
This in turn means the results may not be generalisable to the target population.
We want to inform future studies using proton beam therapy - therefore we need to understand more about the patients that decline participation, and their reasons for doing so.
How can I get involved?
We need your help to identify possible barriers to recruitment in trials of new radiotherapy technology, where treatment is only available at a small number of specialist hospitals.
We have designed a survey (below) asking you to rank potential barriers in relation to the impact they would have on a choice to accept or decline participation in such a study. You will also have the chance to add any additional factors that we have not included.
Your responses will help finalise the design of a study to be run within the TORPEdO clinical trial which is comparing proton beam therapy to standard radiotherapy in head and neck cancer.
Research staff time is supported by a Cancer Research UK Accelerator award.
The researchers acknowledge support by a Cancer Research UK Centres Network Accelerator Award Grant (C309/A21993) to the Advanced Radiotherapy Technologies Network (ART-NET) consortium.
This project has also received a grant from the NIHR Biomedical Research Centre at The Royal Marsden and the Institute of Cancer Research.
We want to find out why some people decide not to join a research trial about radiotherapy. Finding out why will help us when we are designing future studies that use an advanced radiotherapy treatment called proton beam therapy so we need to understand more about the patients that decline participation.
In order to learn about the characteristics of people who decide not to take part, we need to collect some information. We would like your help to decide what information we need to collect and what format would be most preferable. To find out the information, we are inviting people to complete the survey below. In the proposed study that will follow on from this survey we plan to collect basic information (e.g. age, gender, marital status) from people who are living with cancer and who decline to take part in a proton beam therapy clinical trial, and ask them about the reasons they decided not to join the trial.
The first half of the survey relates to factors that may be important in influencing a person’s decision to take part or not take part in a proton beam study. The second half relates to personal information about the patient and the method of data collection.
We think that the survey will take no more than 10 minutes to complete. You can answer the survey anonymously and any information you provide will be held in strictest confidence by the survey study team at The Institute of Cancer Research Clinical Trials and Statistics Unit.
The survey contains a list of statements - we want to you know how much you agree or disagree with each statement.
This part of the research has concluded thank you to everyone who contributed.
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