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What do Black women need to support lifestyle changes after breast cancer?
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We are keen to understand Black women's views and experiences of making lifestyle changes following breast cancer treatment.
Breast cancer is the most common cancer affecting women around the world. About 1 in 7 women will be diagnosed with it during their lives in UK. Many women undergo successful treatment for breast cancer, and some may wish to make lifestyle changes after. However, studies have shown that this is not the same for Black women, whose outcomes have not been as good. Very few studies have included both Black women and ethnic minority women in their study populations. There are many reasons for this, including personal and social factors, how advanced the cancer is when it's found, and the biology of the cancer itself. For instance, Black women are more likely to be diagnosed with a type of breast cancer called triple negative breast cancer.
Additionally, disparities in care play a role. These include not just having access to care but also overcoming cultural barriers to using the care and treatment options available.
How can you get involved?
We would like to hear from Black women who have been diagnosed with breast cancer, as well as their families and friends on why and how people make lifestyle changes. We want to understand more about why people may or may not make lifestyle changes and what resources or support could help.
Please add your ideas below.
We are keen to understand Black women's views and experiences of making lifestyle changes following breast cancer treatment.
Breast cancer is the most common cancer affecting women around the world. About 1 in 7 women will be diagnosed with it during their lives in UK. Many women undergo successful treatment for breast cancer, and some may wish to make lifestyle changes after. However, studies have shown that this is not the same for Black women, whose outcomes have not been as good. Very few studies have included both Black women and ethnic minority women in their study populations. There are many reasons for this, including personal and social factors, how advanced the cancer is when it's found, and the biology of the cancer itself. For instance, Black women are more likely to be diagnosed with a type of breast cancer called triple negative breast cancer.
Additionally, disparities in care play a role. These include not just having access to care but also overcoming cultural barriers to using the care and treatment options available.
How can you get involved?
We would like to hear from Black women who have been diagnosed with breast cancer, as well as their families and friends on why and how people make lifestyle changes. We want to understand more about why people may or may not make lifestyle changes and what resources or support could help.
Lifestyle refers to someone's way of living; the things that a person or particular group of people usually do and making changes is an important component of managing illness such as breast cancer. Many studies have shown that modifying some aspects of lifestyle may have additional benefits in improving overall survival, managing side effects and affect risk for returning.
What we are trying to find out
Given the disparities we see in studies in relation to overall survival, this project focuses specifically on Black women with breast cancer and the lifestyle changes they make and why it’s important to make such changes.
What we don’t understand is whether people are able to make lifestyle changes after their diagnosis. The aim of the project is to understand what the needs are, are there any barriers that may be preventing people who wish to make changes and explore how best to address them.
Timeline
April - November 2024
What do Black women need to support lifestyle changes after breast cancer? is currently at this stage
Initial scoping phase. Information gathering - views of patients/public on Cancer Patients' Voice digital platform.
October - November 2024
this is an upcoming stage for What do Black women need to support lifestyle changes after breast cancer?
Discussion/ focus groups
End of 2024
this is an upcoming stage for What do Black women need to support lifestyle changes after breast cancer?