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Patients’ experiences during treatment with Immunotherapy
Share Patients’ experiences during treatment with Immunotherapy on FacebookShare Patients’ experiences during treatment with Immunotherapy on TwitterShare Patients’ experiences during treatment with Immunotherapy on LinkedinEmail Patients’ experiences during treatment with Immunotherapy link
Immunotherapy is a cancer treatment that helps your immune system recognise and fight off cancer cells. Immune Checkpoint Inhibitors (ICIs) are a type of Immunotherapy that block proteins that stop the immune system from attacking cancer cells.
Immunotherapy can be used to treat many different types of cancer. This study is looking at patients with gastrointestinal cancer who are being treated with Immune Checkpoint Inhibitors. Gastrointestinal cancers include oesophagus, stomach, liver (HCC), small and large intestine, pancreas, biliary system, colon, rectum and anus cancer.
We would like to hear about your experience of this treatment, and if you developed any side effects. We will use this information to see if we can improve patient care and follow up.
If you are or have been treated with Immune Checkpoint Inhibitors for gastrointestinal cancer or any other type of cancer (or you are a carer of someone in this position) please:
Share your story below - tell us about your experience of treatment and the information and support received from healthcare professionals. You can also email this to [email protected]
Share your ideas below - where do you go for information, advice and support?
Be part of a patient advisory group to support the research and have input into the design of this project. This will be a virtual group that will meet at key points in the project. Email [email protected] to register your interest.
Immunotherapy is a cancer treatment that helps your immune system recognise and fight off cancer cells. Immune Checkpoint Inhibitors (ICIs) are a type of Immunotherapy that block proteins that stop the immune system from attacking cancer cells.
Immunotherapy can be used to treat many different types of cancer. This study is looking at patients with gastrointestinal cancer who are being treated with Immune Checkpoint Inhibitors. Gastrointestinal cancers include oesophagus, stomach, liver (HCC), small and large intestine, pancreas, biliary system, colon, rectum and anus cancer.
We would like to hear about your experience of this treatment, and if you developed any side effects. We will use this information to see if we can improve patient care and follow up.
If you are or have been treated with Immune Checkpoint Inhibitors for gastrointestinal cancer or any other type of cancer (or you are a carer of someone in this position) please:
Share your story below - tell us about your experience of treatment and the information and support received from healthcare professionals. You can also email this to [email protected]
Share your ideas below - where do you go for information, advice and support?
Be part of a patient advisory group to support the research and have input into the design of this project. This will be a virtual group that will meet at key points in the project. Email [email protected] to register your interest.
Thank you for sharing your story with us. Please sign up to stay in touch. This way you will get an email from us when we have a new project on the platform.
Share My wife's long history of HPV 16+ head & neck cancer on FacebookShare My wife's long history of HPV 16+ head & neck cancer on TwitterShare My wife's long history of HPV 16+ head & neck cancer on LinkedinEmail My wife's long history of HPV 16+ head & neck cancer link
My wife, Suzanne, was first treated in 2010 at the St. Lukes Cancer Centre, Royal Surrey County Hospital Guildford for SCC HPV16+ right tonsil and cervical lymph nodes, undergoing chemo & RT (60 Gys) followed by radical neck dissection. She recovered well until 2017.
She had a recurrence of the same type of cancer in 2017 (late diagnosis) this time in the nasopharyngeal space. It was not operable as the tumour was wrapped around the carotid artery. She consented to having a high-risk treatment of more RT (60Gys) & chemo at The Royal Marsden, the treatment area overlapping partially with... Continue reading
Share Immunotherapy for Stage 4 Head and Neck Cancer on FacebookShare Immunotherapy for Stage 4 Head and Neck Cancer on TwitterShare Immunotherapy for Stage 4 Head and Neck Cancer on LinkedinEmail Immunotherapy for Stage 4 Head and Neck Cancer link
After chemo-radiation treatment for HPV-related head and neck cancer in 2020, the cancer had unfortunately spread, and in 2021 I was diagnosed with Stage 4 cancer, with 6 tumours across both lungs.
I had biomarkers for PDL1(?) checked out, and they showed that I would be a suitable patient for immunotherapy, specifically Pembrolizumab. I was given an infusion in a cancer ward every 6 weeks, and I had CT scans every 3 months.
The Pembro worked quickly to reduce the size of the tumours and then over the next 2-year period they gradually shrunk to a small size.
I've had 12 rounds of immunotherapy - started in November 2023, after 10 rounds of chemotherapy. I have been explained all side effects to expect, and given a brochure with information about the drug used in the treatment. I'm having treatment once every three weeks. So far, I'm tolerating the immunotherapy much better than chemo, with practically no side effects (I have neuropathy but it seems to be a chemo side effect). The immunotherapy seems to work well for me at the moment.
